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Facing The Truth

It has been over a month since I have sat down to write and still I am not sure what I can write about. The last few months have become so dreamlike as I work to keep myself in reality. The time has flown by so quickly. I almost feel like I have taken a holiday from the real world.

Even sitting here now I do not feel totally here. This disease and the financial and medical issues that go along with it have taken its toll. I go through days of wishing to have my old life back, which is not an option nor is it one that truthfully I want, to trying to figure out what I want to do for the rest of my life.

The old life was a job I grew to dislike intensely and so this disease whilst painful and limiting also served to push me from the comfort of that unwanted life. Although we say we want change, we want the new, it is still a very hard job trying to get yourself to take that step. The fear that goes along with the new can sometimes keep us trapped in situations we no longer want but leave us frozen in a space that feels comfortable.

While I did desire a new beginning and a new life I could not take that step out of fear of failure, fear of not having enough money, even fear of what a new life would bring me. In the end because I could not take that step myself, the choice was taken away from me. I was forced into a new way of being, which was painful on so many levels.

Now I face a future where nothing is guaranteed. I feel like a teenager about to leave school and wondering what do I want to be, what do I want to achieve in this lifetime. I have pondered these thoughts constantly over the past few weeks and although ideas pop into my head, none of them seem to be achievable at the moment.

I struggle daily with the lack of independence, with the lack of choice and with the problems of a body that is not able to be and do what my mind knows is possible. The intention of doing some housework or something creative or even go for a walk is destroyed by the fact that my body is not capable of it. To go from being independent and able and in control to fatigue, constant pain and the anger that comes with it, is stressful and soul destroying.

I know there is something out there for me to do, I just need to find it. When I do I know that the sense of purpose will return and my life will once again have meaning. Until then I try to defeat the negative thoughts and try to stay as positive as possible.

My withdrawal from the world and the reality around me is serving to at least allow me to think a little more clearly than I have over the last year. As things fall into place around me and I understand what my life now is, I begin to come to terms with it. Once I have control of my thoughts and feelings then my life’s purpose will appear and I will embrace the meaning and lesson of this disease and its role in bringing the changes that were so desperately needed.

I will eventually give thanks for this time in my life as the catalyst to a new and beautiful time. Remember to always be careful with your thoughts and words. If you cannot take the steps to go after what you want, that choice will be taken out of your hands. You will get what you want but it may be in a completely different way to what you envision.

Margaret ❤

 

 

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One Step Forward Two Steps Back


Another week another conundrum to sort through. My financial situation improved a little finally in the last week, with a payment from my superannuation company. Income protection which I had never really thought about before has finally managed to come through. Now the problems begin. I am currently on a newstart payment from Centrelink. I have applied for a disability pension for which I finally have an appointment tomorrow. The superannuation company has also approved the total permanent disability claim but that does not necessarily mean that Centrelink will do the same.

While I do not know what will happen with the TPD claim, it has to go back to the superannuation company for final approval, the income protection payment causes another problem. As I have been on the newstart payment since late December, I will now owe them a debt for overpayment. At the same time they will owe me a debt for backpayment for the disability pension if and when it goes through. So to my mind they should both even each other out.

The problem is that neither company will make it that easy. I am worried that the stress that will now come will overshadow the last 6 months of stress, worry and fear. There will be a period of back and forth as each changes their payments to cover the over payment and what the other is paying me.

At this moment in time I would give anything to have my health and my independence back. Having to rely on a government payment for the last 5 months, that didn’t even cover my rent, has severely eroded my confidence and my ability to see a future. I cannot support myself now and the chances of being employed are very low. I doubt there is a company out there that will employ someone with an incurable disease that has health issues that do not stand up to a full days work.

My life as of now consists of constant pain, an ever evolving array of drugs that do little to help my condition and do even more damage to other organs in my body. Without the drugs at the moment I cannot move, with them I am destroying other parts of my body that will lead to an ongoing cycle of disease and pain with no hope in sight.

There has to be a better way. I had an appointment with the Infectious disease people at the local hospital who wanted me to go on more drugs for 9 months because of the chance of the drugs I am on and others further down the line activating another disease. If I take them I am doing more damage to my body if I don’t I risk another disease. It is a no win situation. I decided against the 9 months of drugs because I do not see the point in stopping one thing while activating another.

So I have been doing a lot of my own research into rheumatoid arthritis and its causes and the drugs that I am currently on and those that the doctors assume I will take later on. I have decided that a more natural way is the way to go. With the doctors I have no chance of a cure only containment and so in order to rid myself of this horrible disease I am going to take matters into my own hands.

While I research and adapt myself and my diet to work towards a better outcome I will still take the tablets I am on, but no more than that. I have already decided that I will not take them beyond the end of this year. The pain of this disease is undeniably horrible but it is much better than the odds of the chemicals I now take causing cancer and liver damage.

I am convinced that my diet, or rather lack of healthy eating over the years has along with a case of glandular fever in the early nineties has been a basis for what now ails me. Glandular fever is an infection caused by the epstein barr virus. A nasty virus that from my research continues to live on in your body long after you assume it has gone.

This may sit in your body and do no harm for the rest of your life but can be retriggered again with a lot of stress and anxiety. The pain of rheumatoid arthritis started for me during a time almost 2 years ago when I was diagnosed with a possible cancer of the cervix, uterus or ovaries. The stress and fear that I went through over almost 6 months of testing and surgeries did a lot to undermine my emotional wellbeing. In the end it was discovered after a full hysterectomy that there was never any cancer in the first place and it was just a pathology mistake.

Not long after the final surgery the pain began, slowly at first, one hip then my feet and onwards until my whole body was in constant pain. I made the assumption that it was sciatica and did not seek any treatment other than chiropractic and osteopathic. Neither of which eased my pain. After living on codeine for 9 months and finally being told by my employer to go home and not come back until I was 100% healthy, did I finally decide that I needed to sort this out.

There was some sort of relief after the diagnosis of RA was returned but still left me with not much of a life to speak of, only pain and stress and anxiety. I am firmly convinced that this all triggered the virus to begin its destruction of my health again. So in the simple language of one not trained in medicine, in order to rid myself of my health problems the epstein barr virus must be dealt with first.

As my digestive system begins to work more efficiently my body will respond with more and more healing. Because of the drugs I am currently on, which supress the immune system, my body cannot help itself as efficiently as it normally could. So my first step is to heal my digestive system and focus on only filling my body with that which is good for it.

No more processed foods, only healthy fruits and vegetables to cleanse and clear my system, in order to allow it to fight the virus that is trying to destroy me. From my research so far it does not seem that there is a lot of medical people who will agree. If it cannot be fixed by pill or surgery then they deny that it can be cured. So alternative methods are becoming much more interesting and informative.

I started reading books by Anthony William, the Medical Medium. The more I read the more I sat there nodding my head. It made so much more sense than anything else I had found. So tomorrow will be day one of the protocol he suggests to clear my body and begin to heal. This is not just any diet, this is for me, the difference between life and death. I have no wish to live this way any longer and so I will begin a new life with the expectation of less toxic drugs and a more healthful existence.

Margaret ❤

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